Embark on a Tale of Inspiration with the Extraordinary Odyssey of an 8-Year-Old Russian Girl Born with Her Heart Outside Her Chest

“In a poignant journey to Hollywood, an intrepid eight-year-old girl, who grapples with an exceptionally rare congenital condition that has left her heart vulnerably outside her chest, has embarked upon a voyage to the United States in pursuit of specialized medical intervention and hopeful restoration.”LS "Defying All Odds: Get Inspired by the Incredible Journey of an 8-Year-Old Russian Girl Born with Her Heart Outside Her Chest" LS - LifeAnimal

Virsaviya Borun, who was born in Russia, suffers from thoraco-abdominal syndrome, otherwise known as Pentalogy of Cantrell, which affects five in a million people.

Her heart is protected by only a thin layer of skin, while she is also missing part of her chest bones, a diaphragm and abdominal muscles.

A video posted on YouTube on Monday (Sept 18), titled VirsaviyaWarrior, shows Virsaviya’s heart pushing out of her chest as she giggles.


Her story first came to light in 2015, when Virsaviya’s mother Dari Borun launched a crowdfunding campaign to raise money for her medical bills.

Meet the little girl whose heart pushes out of her chest every time she giggles | The Sun

The campaign has raised over US$71,000 (S$95,600), although the last donation made was in August 2016.

Girl Born With Heart On The Outside Says Jesus Made Her Special

Ms Borun had travelled to Florida in the hopes of her daughter undergoing surgery, but was told that Virsaviya’s blood pressure was too high.

The Epoch Times - When a little girl's rib cage and abdominal muscles did not form properly in the utero, doctors feared she may not survive to full term or through birth.


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